Rare diseases. How Europe is meeting the challenges

שמור ב:

Rare diseases. How Europe is meeting the challenges. Luxemburgo, European Commission, 2013, 100 p.

Ref. 192282

מקום: SIIS Archivo

Palabras clave:
Discapacidad, Enfermedades raras, Enfermos, Investigación, Programas europeos, Proyectos, Tratamiento médico, Unión Europea

פריטים דומים: Rare diseases. How Europe is meeting the challenges

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The voice of rare disease patients
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DOSSIER: LES MALADIES RARES. LE COMBAT DE L'ALLIANCE MALADIES RARES
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Rare diseases a major unmet medical need
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Model of care for rare diseases
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MALADIES RARES. LES ORPHELINS DE LA SANTE
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European awareness of rare diseases. Report
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Recommendations to support the incorporation of rare diseases into social services and policies
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MALADIES RARES
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MALADIES RARES ET MEDICAMENTS ORPHELINS
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THE VOICE OF 12,000 PATIENTS. EXPERIENCES AND EXPECTATIONS OF RARE DISEASE PATIENTS ON DIAGNOSIS AND CARE IN EUROPE
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Addressing the challenges of persons living with a rare disease and their families
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LES MALADIES ET HANDICAPS RARES. DONNEES EPIDEMIOLOGIQUES
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Health-related quality of life and perceived burden of informal caregivers of patients with rare diseases in selected european countries
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LES MALADIES RARES OU SYNDROMES INVALIDANTS
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Guía rápida para investigadores: desarrollo de medicamentos huérfanos para enfermedades raras
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THE EFFECT OF NEW DRUGS ON MORTALITY FROM RARE DISEASES AND HIV
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ANNUAIRE ORPHANET DES MALADIES RARES 2000
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ENFERMEDADES RARAS. MISTERIOS SIN RESPUESTA
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Riche. The Research Inventory for Child Health in Europe
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Análisis de alerta sobre las graves consecuencias de las políticas de recorte en las personas con enfermedades poco frecuentes
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Decreto 54/2015, de 12 de marzo, por el que se regulan el procedimiento y los efectos de la garantía del derecho a la segunda opinión médica en el Sistema público de salud de Galicia.