Spain. En: The voice of rare disease patients
Tallennettuna:
Franklin, K., Spain. En: The voice of rare disease patients. Bruselas, Eurordis, 2013, 68-69 p.
Ref.
196392
Sijainti:
SIIS Archivo
Palabras clave:
Actitudes usuarios, Base de datos, Discapacidad, Encuestas, Enfermedades raras, Enfermos, Expectativas, Registro, España
Actitudes usuarios, Base de datos, Discapacidad, Encuestas, Enfermedades raras, Enfermos, Expectativas, Registro, España
Samankaltaisia teoksia: Spain. En: The voice of rare disease patients
- The voice of rare disease patients
- THE VOICE OF 12,000 PATIENTS. EXPERIENCES AND EXPECTATIONS OF RARE DISEASE PATIENTS ON DIAGNOSIS AND CARE IN EUROPE
- RARE CHILDHOOD DISEASES: HOW SHOULD WE RESPOND?
- Rare diseases. How Europe is meeting the challenges
- LOS REGISTROS DE ENFERMEDADES EN LA INVESTIGACION EPIDEMIOLOGICA DE LAS ENFERMEDADES RARAS EN ESPAÑA
- Health-related quality of life and perceived burden of informal caregivers of patients with rare diseases in selected european countries