Fragile X syndrome: economic burden and health-related quality of life of patients and caregivers in France

Gespeichert in:
Chevreul, K., et al., Fragile X syndrome: economic burden and health-related quality of life of patients and caregivers in France. Journal of Intellectual Disability Research, vol. 59, n. 12, 2015, p. 1108-1120.
Ref. 507353
Standort: SIIS R.104 / SIIS Archivo (R.104)
Palabras clave:
Discapacidad intelectual, Cromosoma X, Infancia, Adultos, Familia, Calidad de vida, Impacto familiar, Cuidador informal, Carga familiar, Salud, Enfermedad, Evaluación, Instrumentos técnicos, Cuestionarios, Francia