Defining Coordinated Care for People with Rare Conditions: A Scoping Review

Antzeko izenburuak

• Spain. En: The voice of rare disease patients
  nork: Franklin, K.
  Argitaratua: (2013)
• The voice of rare disease patients
  nork: Franklin, K.
  Argitaratua: (2013)
• We've been through it all together: supports for parents with children with rare trisomy conditions
  nork: Bruns, D.
• Health-related quality of life and perceived burden of informal caregivers of patients with rare diseases in selected european countries
  nork: Valcárcel, C.
• THE VOICE OF 12,000 PATIENTS. EXPERIENCES AND EXPECTATIONS OF RARE DISEASE PATIENTS ON DIAGNOSIS AND CARE IN EUROPE
  nork: NOURISSIER, C.
  Argitaratua: (2009)