MALADIES RARES. LES ORPHELINS DE LA SANTE

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Xehetasun bibliografikoak
Egile nagusia:	VAUTRIN, L.
Formatua:	Liburua
Hizkuntza:	gaztelania frantsesa
Gaiak:	Atención sanitaria Discapacidad Enfermedades raras Enfermos Entrevistas Fármacos Francia Síndromes Documental
Etiketak:	Etiketa erantsi Etiketarik gabe, Izan zaitez lehena erregistro honi etiketa jartzen!

Antzeko izenburuak: MALADIES RARES. LES ORPHELINS DE LA SANTE

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LES MALADIES RARES OU SYNDROMES INVALIDANTS
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ANNUAIRE ORPHANET DES MALADIES RARES 2000
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Model of care for rare diseases
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Finland's National Plan for Rare Diseases 2014-2017
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Spain. En: The voice of rare disease patients
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The voice of rare disease patients
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Enfermedades raras. Retos y oportunidades para emprendedores sociales
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Enfermedades raras en la edad pediátrica. En: Manual de pediatría social
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Recommendations to support the incorporation of rare diseases into social services and policies
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European awareness of rare diseases. Report
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THE VOICE OF 12,000 PATIENTS. EXPERIENCES AND EXPECTATIONS OF RARE DISEASE PATIENTS ON DIAGNOSIS AND CARE IN EUROPE
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Plan national maladies rares 2011-2014. Qualité de la prise en charge, recherche, Europe: une ambition renouvelée. Axes, mesures, actions. Dispositif de suivi. Financement
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Análisis de alerta sobre las graves consecuencias de las políticas de recorte en las personas con enfermedades poco frecuentes
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Health-related quality of life and perceived burden of informal caregivers of patients with rare diseases in selected european countries
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Síndrome de multiples pliegues benignos de la piel de los miembros (Síndrome de bebé michelín)
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We've been through it all together: supports for parents with children with rare trisomy conditions